A Doctor Day

Well, it's been a doctor day!  My daughter, Abigail, who has Down syndrome, sees twelve doctors on a regular basis (pediatrician, dentist, ophthalmologist, cardiologist, pulmonologist, nephrologist, ENT, hearing and speech, GI, nutritionist, developmental pediatrician, and endocrinologist), and a few more here and there as needed.  Fortunately, several of them are down to every six months or once a year, but we spend a fair amount of time at the doctor's office.  So today Abby had appointments with three of her specialists.  She got a good check-up, just a few tweaks needed here and there to try to keep things on an even keel.  Doesn't sound like much, but to know Abby is to understand that God is still very much involved with His people's lives and He definitely still performs miracles.

You see, Abby is about to turn nine years old . . . which is amazing considering that, early on, her doctors weren't sure that she would make it to two or three years.  Compared to other nine-year-olds, she is a medical mess; but compared to where she has been, she is a walking miracle!  Abigail has had three heart surgeries (the first at seven days old), two cardiac catheterizations, more than a dozen hospital stays, and more labs/tests/procedures than we can count.  At almost nine years old she is a little over 35 pounds and 39 inches tall.  Yes, that is very small for her age, but the great thing is that she's finally growing!  Her medical chart and her list of diagnoses are both longer than she is.  She still needs oxygen.  A lot of oxygen.  All day and night.  Every day and night.   Because of her cardiopulmonary issues, she has to wear a heart monitor to make sure she is getting enough oxygen in her little system.  She still needs her feeding tube, but she is taking most of her nourishment by mouth.  She isn't steady on her feet, but she is walking!  She hasn't found a way to talk to us - yet - but I know she will.  Thanks to God's abounding grace, she is strong and healthy and vibrant and alive.

So I hope you'll forgive me for being very excited about things that we usually take for granted: for instance, a reasonably healthy, growing, child who got a good report at the doctor's office.  That Abigail could be making so much progress is a miracle.  Her smile and joy and hugs inspire everyone who meets her, and as a result, God uses our sweet little daughter every day to touch people's lives.  In short, her life is a daily testimony to the grace and miracles of God!

The Storms of Life

Wow!  What an amazing thunderstorm last night.  Kaboom! all night long.  I'm exhausted today from waking up over and over to the loud cracks of thunder.  My first thought every time I woke up was for the safety of my husband and children.  "What was that?  Is everyone okay????"  Only one of our children woke up through the storm and came downstairs for a bit of reassurance.  He was shaking from the sudden fear of this loud, ominous noise.  A big hug, a quick prayer and a few calming words and all was right again.  Isn't that how our lives often go.  We find ourselves in the thunderstorms of life and want some reassurance.  We turn to God, sometimes in panic, desperately wanting answers and for Him to make it all better.  Over the years, I've actually begun to thank Him (sometimes!) for comforting my heart but not taking away the thunder.  How many times those storms bring us closer to Him and help us be more compassionate to others around us.  We often have to walk through the storms to really understand that God is active and vibrant in our lives - not sitting on the sidelines watching with disinterest.  I don't like the storms, sometimes they are frightening, but I'm so grateful for a God that comforts us and walks with us through the calm days and the storms.

Knighting Ceremony

We recently had the most wonderful birthday celebration for our oldest son, Josiah.  He was turning 18 - officially becoming a man!  For his 13th birthday, we had a ceremony where he was dubbed (with a plastic sword and simple costume) a squire, or knight-in-training.  Now it was time to dub him officially a knight, after the tradition of the Knights Templar.  This time it was a real tunic, a real sword, a real shield, and a real helmet.  Each piece of the outfit had a significance based on the armor of God listed in Ephesians 6:13-17:

¹³ Therefore put on the full armor of God, so that when the day of evil comes, you may be able to stand your ground, and after you have done everything, to stand. ¹⁴ Stand firm then, with the belt of truth buckled around your waist, with the breastplate of righteousness in place, ¹⁵ and with your feet fitted with the readiness that comes from the gospel of peace. ¹⁶ In addition to all this, take up the shield of faith, with which you can extinguish all the flaming arrows of the evil one. ¹⁷ Take the helmet of salvation and the sword of the Spirit, which is the word of God.

It seems like only yesterday he was a sweet baby ready to explore his world.  Now he is a charming, bright, caring man, full of faith and ready to follow God's path for his life.  In 35 days (not that I'm counting or anything!) we drive him to Patrick Henry College to continue his lifelong pursuit of wisdom and knowledge.  Oh, how we will miss his wit, his laughter, and his kindness!  We have worked on giving him solid roots, now it is time to let him test his wings.  He is ready, and God is always faithful to guide and direct those who seek after Him with all of their hearts and all of their lives.  We love you so much, Josiah, and we are so proud of the fine young man you have become!